Well...no one should have to start their Mondays (especially after a holiday that encourages gorging) by getting on the scales! I did, and don't think I didn't let everyone know the level of stupidity with which I found that idea. Then they made me take a simple neurological test. Tests have never been my strength. To say the least, they were not impressed! Apparently, the physical and mental stress of the holidays were more than my little melon...I mean Big brain could handle. Have you ever seen a stroke or head trauma patient go through therapy? Touch your nose, touch my finger, touch your nose, and over here...hmmm...felt a bit like the hokie pokie. Good news is that I write with my right, and make a mean martini with my left! I have fluid built up in my joints, and they do not really know why, but I told them it is much better than before. I assumed it was normal so I never said anything. Oh well, their loss. I am convinced that it will improve on its own as I become more active. I finished the appointment by getting another vaccine and then giving blood...all before 9am.
I began another stage down on Monday. Whoo-hoo! Once again, they informed me that they are not experts on my condition (as one does not exist) so they will follow my lead. What?! Ok, lets keep going. I have never been patient and I am ready to be off these drugs. "Well, if we hit a snag, we can always go back up," says my genius doctor. Sure, as long as my brains don't scramble. Haahaa, silly doctors.
Alright, so do you remember that they told me to refrain from stress while my brain tries to heal? Yea, me too...but someone forgot to tell the rest of the universe. After a full holiday week, I was sitting on the couch with my sweet 10 year old daughter. I was watching her struggle to see. She kept rolling her eyes. While trying to read, she was moving the book around to see the words. I began to ask questions and she became highly emotional. She has been having severe mood swings, and I have put it off on the impending puberty. While I dreaded the thought, it now sounds like it would be a blessing. Bradie explained that she sees thousands of dots when she looks at things. It is like looking through a screen or at a tv that is not in tune. While she claims that it has been this way as long as she can remember, she has never struggled to see before. I took her to the eye doctor. They ran many different tests and said everything looks normal. He ruled out floaters, migraines, allergies, and every other eye condition he could imagine. Feeling strongly that this is neurological, he referred us to our family physician. We met with them this morning. After her examine, they too feel it is neurological. We have a MRI scheduled for tomorrow afternoon and then will be referred to a pediatric neurologist. "Well, one of our kids was bound to be messed up in the head," my sweet husband says. Yes, he actually thought he was being funny! Truly, we all are at the point of needing to find humor.
Please keep us in your prayers and I will keep you posted as we learn more. Thank you to everyone who has given us support. It is what helps us get through these nutty times.
P.S. Below is a picture of Bradie learning who to make my meatball recipe.
Waiting for an update...how'd the MRI go. My love, thoughts and prayers are with you...I am out of school for 3 weeks starting the 11th...please let me do something for you!!! I feel so useless as a friend!!! Please call/text..love you bunches
ReplyDeleteDawn
How cute is that?!?!? She is very serious in that kitchen, isn't she?!?! haha! Stay strong John, Kim and kiddos! You guys are precious and God is on YOUR SIDE!!!
ReplyDeleteMuch Love,
Deidra